MARC details
| 000 -LEADER |
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| fixed length control field |
03189nam a22003977a 4500 |
| 008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION |
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| fixed length control field |
180928s20182018 xxu||||| |||| 00| 0 eng d |
| 022 ## - INTERNATIONAL STANDARD SERIAL NUMBER |
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| International Standard Serial Number |
2040-2295 |
| 024 ## - OTHER STANDARD IDENTIFIER |
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| Standard number or code |
10.1155/2018/9541621 [doi] |
| 024 ## - OTHER STANDARD IDENTIFIER |
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| Standard number or code |
PMC6140003 [pmc] |
| 040 ## - CATALOGING SOURCE |
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| Original cataloging agency |
Ovid MEDLINE(R) |
| 099 ## - LOCAL FREE-TEXT CALL NUMBER (OCLC) |
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| PMID |
30250657 |
| 245 ## - TITLE STATEMENT |
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| Title |
The Patient in Precision Medicine: A Systematic Review Examining Evaluations of Patient-Facing Materials. [Review] |
| 251 ## - Source |
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| Source |
Journal of Healthcare Engineering. 2018:9541621, 2018. |
| 252 ## - Abbreviated Source |
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| Abbreviated source |
J. healthc. eng.. 2018:9541621, 2018. |
| 253 ## - Journal Name |
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| Journal name |
Journal of healthcare engineering |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
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| Year |
2018 |
| 260 ## - PUBLICATION, DISTRIBUTION, ETC. |
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| Manufacturer |
FY2019 |
| 265 ## - SOURCE FOR ACQUISITION/SUBSCRIPTION ADDRESS [OBSOLETE] |
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| Publication status |
epublish |
| 266 ## - Date added to catalog |
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| Date added to catalog |
2018-09-28 |
| 520 ## - SUMMARY, ETC. |
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| Abstract |
Precision medicine (PM) has the potential to tailor healthcare to the individual patient by using their genetic information to guide treatment choices. However, this process is complex and difficult to understand for patients and providers alike. With a recent push in the healthcare community to understand the patient experience and engage patients in their care, it is important to give patients the opportunity to learn about PM. We performed a systematic review to identify previous work assessing the quality of patient-facing PM materials from 2008 to July 2018. Ten studies were identified, which used varying methods and measures. A qualitative assessment was conducted to compare key elements of the studies, including study design, characteristics of the participant population, what measurements were used to assess the PM materials, understandability, preference, psychological reactions, and the type of PM materials being assessed. The studies identified provide important groundwork by highlighting consistent aspects of design that aid in comprehension. Eight of the ten studies focused on the content and organization of genomic test results, while the remaining two assessed educational tools. Two main design elements that appeared across the studies were appropriately designed visual aids and simplified language. The studies identified were limited by the participant populations that were used, which were primarily white and well educated. Only one study attempted to oversample patient populations typically underrepresented in this type of research. Through our systematic review, it is evident that the breadth of knowledge in this field is limited in scope and that more work must be done to ensure that patients can engage in their care when faced with PM. |
| 546 ## - LANGUAGE NOTE |
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| Language note |
English |
| 650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM |
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| Topical term or geographic name entry element |
IN PROCESS -- NOT YET INDEXED |
| 651 ## - SUBJECT ADDED ENTRY--GEOGRAPHIC NAME |
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| Institution |
MedStar Institute for Innovation |
| 656 ## - INDEX TERM--OCCUPATION |
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| Department |
National Center for Human Factors in Healthcare |
| 657 ## - INDEX TERM--FUNCTION |
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| Medline publication type |
Journal Article |
| 657 ## - INDEX TERM--FUNCTION |
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| Medline publication type |
Review |
| 700 ## - ADDED ENTRY--PERSONAL NAME |
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| Local Authors |
Adams, Katharine |
| 700 ## - ADDED ENTRY--PERSONAL NAME |
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| Local Authors |
Kowalski, Rebecca |
| 700 ## - ADDED ENTRY--PERSONAL NAME |
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| Local Authors |
Miller, Kristen |
| 700 ## - ADDED ENTRY--PERSONAL NAME |
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| Local Authors |
Ratwani, Raj M |
| 700 ## - ADDED ENTRY--PERSONAL NAME |
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| Local Authors |
Wynn, Rachel M |
| 790 ## - Authors |
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| All authors |
Adams KT, Kowalski RL, Miller KE, Ratwani RM, Shivega WG, Wynn RM |
| 856 ## - ELECTRONIC LOCATION AND ACCESS |
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| DOI |
<a href="https://dx.doi.org/10.1155/2018/9541621">https://dx.doi.org/10.1155/2018/9541621</a> |
| Public note |
https://dx.doi.org/10.1155/2018/9541621 |
| 858 ## - ORCID |
|---|
| ORCID text |
Wynn, Rachel M |
| Orcid |
<a href="https://orcid.org/0000-0002-0345-5313">https://orcid.org/0000-0002-0345-5313</a> |
| Name |
https://orcid.org/0000-0002-0345-5313 |
| 942 ## - ADDED ENTRY ELEMENTS (KOHA) |
|---|
| Koha item type |
Journal Article |
| Item type description |
Article |
