A thematic analysis of in-hospital end-of-life care experiences of surviving family members.

MedStar author(s):
Citation: Death Studies. 45(6):469-479, 2021.PMID: 31397642Institution: MedStar Washington Hospital CenterDepartment: Medicine/Palliative CareForm of publication: Journal ArticleMedline article type(s): Journal ArticleSubject headings: *Bereavement | *Hospice Care | *Terminal Care | Family | Hospitals | Humans | Qualitative ResearchYear: 2021ISSN:
  • 0748-1187
Name of journal: Death studiesAbstract: While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants ' memories were organized into two parent themes: those related to satisfaction with the care received and effective communication; those identifying shortcomings in patient care, hospital-family communication, hospital environment, and care burden on the part of family members. These findings provide insight to enhance services to patients and their families at end-of-life and improve postmortem and bereavement services.All authors: Grimes C, Groninger H, Johnson S, Kelemen A, Stein SOriginally published: Death Studies. :1-11, 2019 Aug 09Fiscal year: FY2020Fiscal year of original publication: FY2020Digital Object Identifier: Date added to catalog: 2019-08-27
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Journal Article MedStar Authors Catalog Article 31397642 Available 31397642

While end-of-life care (EoLC) priorities for patients dying in the hospital are well-documented, few data characterize needs and experiences of their family members. We conducted thematic analysis of audio recorded interviews of 18 bereaved family members to elucidate these experiences. Participants ' memories were organized into two parent themes: those related to satisfaction with the care received and effective communication; those identifying shortcomings in patient care, hospital-family communication, hospital environment, and care burden on the part of family members. These findings provide insight to enhance services to patients and their families at end-of-life and improve postmortem and bereavement services.

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