TY  - BOOK
AU  - Bartee, Ashley E
AU  - Butanis, Alessandra
AU  - Giladi, Aviram M
AU  - Means, Kenneth R Jr
AU  - Titanji, Bosung
TI  - Establishing a Research-Related Patient and Family Advisory Council for a Surgical Specialty
SN  - 2589-5141
PY  - 2024///
KW  - Curtis National Hand Center
KW  - Curtis National Hand center
KW  - Journal Article
N2  - Engaging patients and family members in formal feedback for health care processes can be impactful, especially when cultivating new care and research protocols. However, most surgical groups lack established systems for enlisting these critical stakeholders. This is a descriptive report of how we built our Patient and Family Advisory Council (PFAC) through a multistep process with patients, providers, research staff, and administrators. We also detail how it has advanced research, care, and mutually beneficial collaboration at our hand center. For example, our PFAC has provided vital input on multiple grant submissions, assisted with the development of a web-based digital application for thumb arthritis therapy, and improved our patient care approaches. To successfully create and sustain a PFAC, there must be commitment from multiple stakeholders across clinical, research, administration, and leadership spectra. Through this alliance, all stakeholders can develop better care and investigative strategies. Copyright © 2024 The Authors
UR  - https://dx.doi.org/10.1016/j.jhsg.2024.03.012
ER  -