TY - BOOK AU - Gimenez, Luis TI - Effectiveness of informational decision aids and a live donor financial assistance program on pursuit of live kidney transplants in African American hemodialysis patients SN - 1471-2369 PY - 2018/// KW - *African Americans KW - *Decision Support Techniques KW - *Financial Support KW - *Kidney Transplantation/mt [Methods] KW - *Living Donors KW - *Renal Dialysis/mt [Methods] KW - Adult KW - African Americans/px [Psychology] KW - Aged KW - Decision Making KW - Female KW - Health Knowledge, Attitudes, Practice KW - Humans KW - Kidney Transplantation/ec [Economics] KW - Kidney Transplantation/px [Psychology] KW - Living Donors/px [Psychology] KW - Male KW - Middle Aged KW - Patient Participation/ec [Economics] KW - Patient Participation/mt [Methods] KW - Patient Participation/px [Psychology] KW - Renal Dialysis/ec [Economics] KW - Renal Dialysis/px [Psychology] KW - Tissue and Organ Procurement KW - Treatment Outcome KW - MedStar Good Samaritan Hospital KW - Journal Article N1 - Available online from MWHC library: 2000 - present N2 - BACKGROUND: African Americans have persistently poor access to living donor kidney transplants (LDKT). We conducted a small randomized trial to provide preliminary evidence of the effect of informational decision support and donor financial assistance interventions on African American hemodialysis patients' pursuit of LDKT; CONCLUSIONS: Findings suggest these interventions may need to be paired with personal support or navigation services to overcome key communication, logistical, and financial barriers to LDKT; METHODS: Study participants were randomly assigned to receive (1) Usual Care; (2) the Providing Resources to Enhance African American Patients' Readiness to Make Decisions about Kidney Disease (PREPARED); or (3) PREPARED plus a living kidney donor financial assistance program. Our primary outcome was patients' actions to pursue LDKT (discussions with family, friends, or doctor; initiation or completion of the recipient LDKT medical evaluation; or identification of a donor). We also measured participants' attitudes, concerns, and perceptions of interventions' usefulness; RESULTS: Of 329 screened, 92 patients were eligible and randomized to Usual Care (n=31), PREPARED (n=30), or PREPARED plus financial assistance (n=31). Most participants reported interventions helped their decision making about renal replacement treatments (62%). However there were no statistically significant improvements in LDKT actions among groups over 6 months. Further, no participants utilized the living donor financial assistance benefit; TRIAL REGISTRATION: ClinicalTrials.gov [ NCT01439516 ] [August 31, 2011] UR - https://dx.doi.org/10.1186/s12882-018-0901-x ER -