000 | 03520nam a22004937a 4500 | ||
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008 | 180802s20192019 xxu||||| |||| 00| 0 eng d | ||
022 | _a1049-9091 | ||
024 | _a10.1177/1049909118789338 [doi] | ||
040 | _aOvid MEDLINE(R) | ||
099 | _a30037272 | ||
245 | _aGetting to the Heart of the Matter: A Regional Survey of Current Hospice Practices Caring for Patients With Heart Failure Receiving Advanced Therapies. | ||
251 | _aAmerican Journal of Hospice & Palliative Medicine. 36(1):55-59, 2019 Jan. | ||
252 |
_aAm J Hosp Palliat Care. 36(1):55-59, 2019 Jan.=790 \\ _aGroninger H |
||
253 | _aThe American journal of hospice & palliative care | ||
260 | _c2019 | ||
260 | _fFY2019 | ||
266 | _d2018-08-02 | ||
269 | _fFY2018 | ||
520 | _aBACKGROUND: No guidelines exist regarding care for patients with advanced heart failure (HF) receiving hospice care while continuing advanced HF therapies such as left ventricular assist devices (LVADs) or continuous inotropes. | ||
520 | _aCONCLUSIONS: Hospice specialists reported widely varied practice experiences caring for patients with HF receiving advanced therapies, noted specific challenges for care of these patients, and expressed a desire for targeted HF education. | ||
520 | _aDESIGN: Cross-sectional survey of hospice clinical and administrative leaders. | ||
520 | _aOBJECTIVE: We surveyed hospice providers in our tristate region to determine hospice demographics, current practices for care of patients with advanced HF, and perceived challenges of providing advanced HF therapies. | ||
520 | _aRESULTS: Forty-six respondents representing 23 hospices completed the survey. Over half (27/46) held leadership administrative roles, and most (37/46) had more than 5 years of hospice experience. Although lack of experience and cost were cited as primary barriers to providing inotrope therapy in home hospice, about half of respondents (24/46) said they would manage inotropes. All participants said their respective hospices accept patients with implantable cardioverter-defibrillators; over half (28/46) said they accept patients with LVADs into hospice care. Lack of experience with LVADs was the most frequently cited barrier. Most participants were interested in training and support by an advanced HF program to facilitate hospice care of patients receiving these advanced therapies. General access to hospice services for patients with HF at their organization was considered adequate by 30 of 46 participants. Most (32/46) reported that referrals are made too late. | ||
546 | _aEnglish | ||
650 | _a*Defibrillators, Implantable | ||
650 | _a*Heart Failure/th [Therapy] | ||
650 | _a*Heart-Assist Devices | ||
650 | _a*Hospice Care/og [Organization & Administration] | ||
650 | _a*Palliative Care/og [Organization & Administration] | ||
650 | _aCross-Sectional Studies | ||
650 | _aHospice Care/st [Standards] | ||
650 | _aHumans | ||
650 | _aPalliative Care/st [Standards] | ||
651 | _aMedStar Health Research Institute | ||
651 | _aMedStar Washington Hospital Center | ||
656 | _aMedicine/Palliative Care | ||
657 | _aJournal Article | ||
700 | _aGroninger, Hunter | ||
700 | _aWalker, Kathryn A | ||
790 | _aGilhuly D, Walker KA | ||
856 |
_uhttps://dx.doi.org/10.1177/1049909118789338 _zhttps://dx.doi.org/10.1177/1049909118789338 |
||
858 |
_yGroninger, Hunter _uhttp://orcid.org/0000-0001-7416-1999 _zhttp://orcid.org/0000-0001-7416-1999 |
||
942 |
_cART _dArticle |
||
999 |
_c11140 _d11140 |