000 03520nam a22004937a 4500
008 180802s20192019 xxu||||| |||| 00| 0 eng d
022 _a1049-9091
024 _a10.1177/1049909118789338 [doi]
040 _aOvid MEDLINE(R)
099 _a30037272
245 _aGetting to the Heart of the Matter: A Regional Survey of Current Hospice Practices Caring for Patients With Heart Failure Receiving Advanced Therapies.
251 _aAmerican Journal of Hospice & Palliative Medicine. 36(1):55-59, 2019 Jan.
252 _aAm J Hosp Palliat Care. 36(1):55-59, 2019 Jan.=790 \\
_aGroninger H
253 _aThe American journal of hospice & palliative care
260 _c2019
260 _fFY2019
266 _d2018-08-02
269 _fFY2018
520 _aBACKGROUND: No guidelines exist regarding care for patients with advanced heart failure (HF) receiving hospice care while continuing advanced HF therapies such as left ventricular assist devices (LVADs) or continuous inotropes.
520 _aCONCLUSIONS: Hospice specialists reported widely varied practice experiences caring for patients with HF receiving advanced therapies, noted specific challenges for care of these patients, and expressed a desire for targeted HF education.
520 _aDESIGN: Cross-sectional survey of hospice clinical and administrative leaders.
520 _aOBJECTIVE: We surveyed hospice providers in our tristate region to determine hospice demographics, current practices for care of patients with advanced HF, and perceived challenges of providing advanced HF therapies.
520 _aRESULTS: Forty-six respondents representing 23 hospices completed the survey. Over half (27/46) held leadership administrative roles, and most (37/46) had more than 5 years of hospice experience. Although lack of experience and cost were cited as primary barriers to providing inotrope therapy in home hospice, about half of respondents (24/46) said they would manage inotropes. All participants said their respective hospices accept patients with implantable cardioverter-defibrillators; over half (28/46) said they accept patients with LVADs into hospice care. Lack of experience with LVADs was the most frequently cited barrier. Most participants were interested in training and support by an advanced HF program to facilitate hospice care of patients receiving these advanced therapies. General access to hospice services for patients with HF at their organization was considered adequate by 30 of 46 participants. Most (32/46) reported that referrals are made too late.
546 _aEnglish
650 _a*Defibrillators, Implantable
650 _a*Heart Failure/th [Therapy]
650 _a*Heart-Assist Devices
650 _a*Hospice Care/og [Organization & Administration]
650 _a*Palliative Care/og [Organization & Administration]
650 _aCross-Sectional Studies
650 _aHospice Care/st [Standards]
650 _aHumans
650 _aPalliative Care/st [Standards]
651 _aMedStar Health Research Institute
651 _aMedStar Washington Hospital Center
656 _aMedicine/Palliative Care
657 _aJournal Article
700 _aGroninger, Hunter
700 _aWalker, Kathryn A
790 _aGilhuly D, Walker KA
856 _uhttps://dx.doi.org/10.1177/1049909118789338
_zhttps://dx.doi.org/10.1177/1049909118789338
858 _yGroninger, Hunter
_uhttp://orcid.org/0000-0001-7416-1999
_zhttp://orcid.org/0000-0001-7416-1999
942 _cART
_dArticle
999 _c11140
_d11140