000			04990nam a22005777a 4500
008			240807s20242024 xxu||||| |||| 00| 0 eng d
022			_a1932-6203
024			_aPMC11152264 [pmc]
024			_aPONE-D-23-24670 [pii]
040			_aOvid MEDLINE(R)
099			_a38838037
245			_aDeveloping a multimedia patient-reported outcomes measure for low literacy patients with a human-centered design approach.
251			_aPLoS ONE [Electronic Resource]. 19(6):e0304351, 2024.
252			_aPLoS ONE. 19(6):e0304351, 2024.
253			_aPloS one
260			_c2024
260			_fFY2024
260			_p2024
265			_sepublish
265			_tMEDLINE
266			_d2024-08-07
266			_z2024/06/05 13:44
501			_aAvailable online through MWHC library: 2006 - present
520			_aDISCUSSION: We successfully adapted the PROMIS-UE to an mPROMIS-UE that addresses the challenges identified by a mixed literacy hand and upper extremity patient cohort. This demonstrates the feasibility of adapting PROMs to multimedia versions. Future research will include back adaptation, usability testing via qualitative evaluation, and psychometric validation of the mPROMIS-UE. A validated mPROMIS-UE will expand clinicians' and investigators' ability to capture patient-reported outcomes in mixed literacy populations. Copyright: © 2024 Azad et al. This is an open access article distributed under the terms of the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original author and source are credited.
520			_aINTRODUCTION: Almost all patient-reported outcomes measures (PROMs) are text-based, which impedes accurate completion by low and limited literacy patients. Few PROMs are designed or validated to be self-administered, either in clinical or research settings, by patients of all literacy levels. We aimed to adapt the Patient Reported Outcomes Measurement Information System Upper Extremity Short Form (PROMIS-UE) to a multimedia version (mPROMIS-UE) that can be self-administered by hand and upper extremity patients of all literacy levels.
520			_aMETHODS: Our study in which we applied the Multimedia Adaptation Protocol included seven phases completed in a serial, iterative fashion: planning with our community advisory board; direct observation; discovery interviews with patients, caregivers, and clinic staff; ideation; prototyping; member-checking interviews; and feedback. Direct observations were documented in memos that underwent rapid thematic analysis. Interviews were audio-recorded and documented using analytic memos; a rapid, framework-guided thematic analysis with both inductive and deductive themes was performed. Themes were distilled into design challenges to guide ideation and prototyping that involved our multidisciplinary research team. To assess completeness, credibility, and acceptability we completed additional interviews with member-checking of initial findings and consulted our community advisory board.
520			_aRESULTS: We conducted 12 hours of observations. We interviewed 17 adult English-speaking participants (12 patients, 3 caregivers, 2 staff) of mixed literacy. Our interviews revealed two distinct user personas and three distinct literacy personas; we developed the mPROMIS-UE with these personas in mind. Themes from interviews were distilled into four broad design challenges surrounding literacy, customizability, convenience, and shame. We identified features (audio, animations, icons, avatars, progress indicator, illustrated response scale) that addressed the design challenges. The last 6 interviews included member-checking; participants felt that the themes, design challenges, and corresponding features resonated with them. These features were synthesized into an mPROMIS-UE prototype that underwent rounds of iterative refinement, the last of which was guided by recommendations from our community advisory board.
546			_aEnglish
650			_a*Literacy
650			_a*Multimedia
650			_a*Patient Reported Outcome Measures
650			_aAdult
650			_aAged
650			_aFemale
650			_aHealth Literacy
650			_aHumans
650			_aMale
650			_aMiddle Aged
650			_zAutomated
651			_aCurtis National Hand Center
651			_aMedStar Health Research Institute
657			_aJournal Article
700			_aAzad, Chao Long _bCURT
700			_aFong, Allan _bMHRI
700			_aGiladi, Aviram M _bCURT
790			_aAzad CL, Beres LK, Wu AW, Fong A, Giladi AM
856			_uhttps://dx.doi.org/10.1371/journal.pone.0304351 _zhttps://dx.doi.org/10.1371/journal.pone.0304351
858			_yAzad, Chao Long _uhttps://orcid.org/0000-0003-4403-909X _zhttps://orcid.org/0000-0003-4403-909X
858			_yGiladi, Aviram M _uhttps://orcid.org/0000-0001-7688-957X _zhttps://orcid.org/0000-0001-7688-957X
942			_cART _dArticle
999			_c14594 _d14594