000 02365nam a22003857a 4500
008 240117s20242024 xxu||||| |||| 00| 0 eng d
022 _a2589-5141
024 _aPMC11331160 [pmc]
024 _aS2589-5141(24)00067-7 [pii]
040 _aOvid MEDLINE(R)
099 _a39166205
245 _aEstablishing a Research-Related Patient and Family Advisory Council for a Surgical Specialty.
251 _aJournal of Hand Surgery Global Online. 6(4):601-604, 2024 Jul.
252 _aJ Hand Surg Glob Online. 6(4):601-604, 2024 Jul.
253 _aJournal of hand surgery global online
260 _c2024
260 _fFY2025
260 _p2024 Jul
265 _sepublish
265 _tPubMed-not-MEDLINE
266 _z2024/08/21 04:27
520 _aEngaging patients and family members in formal feedback for health care processes can be impactful, especially when cultivating new care and research protocols. However, most surgical groups lack established systems for enlisting these critical stakeholders. This is a descriptive report of how we built our Patient and Family Advisory Council (PFAC) through a multistep process with patients, providers, research staff, and administrators. We also detail how it has advanced research, care, and mutually beneficial collaboration at our hand center. For example, our PFAC has provided vital input on multiple grant submissions, assisted with the development of a web-based digital application for thumb arthritis therapy, and improved our patient care approaches. To successfully create and sustain a PFAC, there must be commitment from multiple stakeholders across clinical, research, administration, and leadership spectra. Through this alliance, all stakeholders can develop better care and investigative strategies. Copyright © 2024 The Authors.
546 _aEnglish
651 _aCurtis National Hand Center
656 _aCurtis National Hand center
657 _aJournal Article
700 _aBartee, Ashley E
_bCURT
700 _aButanis, Alessandra
_bCURT
700 _aGiladi, Aviram M
_bCURT
700 _aMeans, Kenneth R Jr
_bCURT
700 _aTitanji, Bosung
_bCURT
790 _aButanis A , Titanji B , Bartee AE , Giladi AM , Means KR Jr
856 _uhttps://dx.doi.org/10.1016/j.jhsg.2024.03.012
_zhttps://dx.doi.org/10.1016/j.jhsg.2024.03.012
942 _cART
_dArticle
999 _c14617
_d14617