000 | 02365nam a22003857a 4500 | ||
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008 | 240117s20242024 xxu||||| |||| 00| 0 eng d | ||
022 | _a2589-5141 | ||
024 | _aPMC11331160 [pmc] | ||
024 | _aS2589-5141(24)00067-7 [pii] | ||
040 | _aOvid MEDLINE(R) | ||
099 | _a39166205 | ||
245 | _aEstablishing a Research-Related Patient and Family Advisory Council for a Surgical Specialty. | ||
251 | _aJournal of Hand Surgery Global Online. 6(4):601-604, 2024 Jul. | ||
252 | _aJ Hand Surg Glob Online. 6(4):601-604, 2024 Jul. | ||
253 | _aJournal of hand surgery global online | ||
260 | _c2024 | ||
260 | _fFY2025 | ||
260 | _p2024 Jul | ||
265 | _sepublish | ||
265 | _tPubMed-not-MEDLINE | ||
266 | _z2024/08/21 04:27 | ||
520 | _aEngaging patients and family members in formal feedback for health care processes can be impactful, especially when cultivating new care and research protocols. However, most surgical groups lack established systems for enlisting these critical stakeholders. This is a descriptive report of how we built our Patient and Family Advisory Council (PFAC) through a multistep process with patients, providers, research staff, and administrators. We also detail how it has advanced research, care, and mutually beneficial collaboration at our hand center. For example, our PFAC has provided vital input on multiple grant submissions, assisted with the development of a web-based digital application for thumb arthritis therapy, and improved our patient care approaches. To successfully create and sustain a PFAC, there must be commitment from multiple stakeholders across clinical, research, administration, and leadership spectra. Through this alliance, all stakeholders can develop better care and investigative strategies. Copyright © 2024 The Authors. | ||
546 | _aEnglish | ||
651 | _aCurtis National Hand Center | ||
656 | _aCurtis National Hand center | ||
657 | _aJournal Article | ||
700 |
_aBartee, Ashley E _bCURT |
||
700 |
_aButanis, Alessandra _bCURT |
||
700 |
_aGiladi, Aviram M _bCURT |
||
700 |
_aMeans, Kenneth R Jr _bCURT |
||
700 |
_aTitanji, Bosung _bCURT |
||
790 | _aButanis A , Titanji B , Bartee AE , Giladi AM , Means KR Jr | ||
856 |
_uhttps://dx.doi.org/10.1016/j.jhsg.2024.03.012 _zhttps://dx.doi.org/10.1016/j.jhsg.2024.03.012 |
||
942 |
_cART _dArticle |
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999 |
_c14617 _d14617 |