000 02691nam a22004457a 4500
008 191119s20192019 xxu||||| |||| 00| 0 eng d
022 _a1055-8586
024 _a10.1016/j.sempedsurg.2019.150846 [doi]
024 _aS1055-8586(19)30104-0 [pii]
040 _aOvid MEDLINE(R)
099 _a31668293
245 _aHealthcare transition for patients with differences of sexual development and complex urogenital conditions.
251 _aSeminars in Pediatric Surgery. 28(5):150846, 2019 Oct.
252 _aSemin Pediatr Surg. 28(5):150846, 2019 Oct.
252 _zSemin Pediatr Surg. 28(5):150846, 2019 Oct.
253 _aSeminars in pediatric surgery
260 _c2019
260 _fFY2020
265 _sppublish
266 _d2019-11-19
268 _aSeminars in Pediatric Surgery. 28(5):150846, 2019 Oct.
520 _aChildren with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical "safety net" and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being. Copyright (c) 2019 Elsevier Inc. All rights reserved.
546 _aEnglish
650 _a*Disorders of Sex Development
650 _a*Transition to Adult Care/og [Organization & Administration]
650 _a*Urogenital Abnormalities
650 _aAdolescent
650 _aElectronic Health Records
650 _aHumans
650 _aQuality Improvement
650 _aSurveys and Questionnaires
650 _aYoung Adult
651 _aMedStar Washington Hospital Center
656 _aObstetrics and Gynecology/Pediatric and Adolescent
657 _aJournal Article
700 _aGomez-Lobo, Veronica
790 _aChulani VL, Gomez-Lobo V, Grimsby GM, Kielb SJ
856 _uhttps://dx.doi.org/10.1016/j.sempedsurg.2019.150846
_zhttps://dx.doi.org/10.1016/j.sempedsurg.2019.150846
942 _cART
_dArticle
999 _c4759
_d4759