What young people with spina bifida want to know about sex and are not being told. (Record no. 1980)

MARC details
000 -LEADER
fixed length control field 02788nam a22004457a 4500
008 - FIXED-LENGTH DATA ELEMENTS--GENERAL INFORMATION
fixed length control field 161111s20152015 xxu||||| |||| 00| 0 eng d
022 ## - INTERNATIONAL STANDARD SERIAL NUMBER
International Standard Serial Number 0305-1862
040 ## - CATALOGING SOURCE
Original cataloging agency Ovid MEDLINE(R)
099 ## - LOCAL FREE-TEXT CALL NUMBER (OCLC)
PMID 26331351
245 ## - TITLE STATEMENT
Title What young people with spina bifida want to know about sex and are not being told.
251 ## - Source
Source Child: Care, Health & Development. 41(6):963-9, 2015 Nov.
252 ## - Abbreviated Source
Abbreviated source Child Care Health Dev. 41(6):963-9, 2015 Nov.
253 ## - Journal Name
Journal name Child: care, health and development
260 ## - PUBLICATION, DISTRIBUTION, ETC.
-- 2015 Nov
260 ## - PUBLICATION, DISTRIBUTION, ETC.
Year 2015
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Manufacturer 2016
266 ## - Date added to catalog
Date added to catalog 2017-03-06
520 ## - SUMMARY, ETC.
Abstract CONCLUSIONS: Youth with SB reported difficulties in finding answers to questions regarding their sexuality, romantic relationships and fertility. This study revealed a need for help from the medical community to inform and empower youth with SB in the area of sexual health. Through sexual and reproductive health education with patients and parents starting at an early age, medical providers can further encourage healthy emotional and physical development in adolescents transitioning into adulthood.Copyright © 2015 John Wiley & Sons Ltd.
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Abstract METHODS: As part of the Video Intervention/Prevention Assessment (VIA) - transitions, a prospective cohort study, 309 h of video data were collected from 14 participants (13-28 years old) with SB. Participants were loaned a video camcorder for 8-12 weeks to shoot visual narratives about any aspects of their lives. V/A visual narratives were analysed with grounded theory using NVivo.
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Abstract OBJECTIVE: The aim of this paper was to examine sexual knowledge, concerns and needs of youth with spina bifida (SB) to inform the medical community on ways to better support their sexual health.
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Abstract RESULTS: Out of 14 participants, 11 (six women) addressed issues surrounding romantic relationships and sexuality in their video clips. Analysis revealed shared concerns, questions and challenges regarding sexuality gathered under four main themes: romantic relationships, sexuality, fertility and parenthood, and need for more talk on sexuality.
546 ## - LANGUAGE NOTE
Language note English
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element *Sexuality
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Topical term or geographic name entry element *Spinal Dysraphism/pp [Physiopathology]
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Topical term or geographic name entry element *Spinal Dysraphism/px [Psychology]
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Adolescent
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Topical term or geographic name entry element Adult
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Topical term or geographic name entry element Female
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Humans
650 ## - SUBJECT ADDED ENTRY--TOPICAL TERM
Topical term or geographic name entry element Male
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Topical term or geographic name entry element Prospective Studies
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Topical term or geographic name entry element Video Recording
651 ## - SUBJECT ADDED ENTRY--GEOGRAPHIC NAME
Institution MedStar Washington Hospital Center
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Department Obstetrics and Gynecology
657 ## - INDEX TERM--FUNCTION
Medline publication type Journal Article
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Local Authors Light, Alexis D
790 ## - Authors
All authors Akre C, Light A, Polvinen J, Rich M, Sherman L
856 ## - ELECTRONIC LOCATION AND ACCESS
DOI <a href="http://dx.doi.org/10.1111/cch.12282">http://dx.doi.org/10.1111/cch.12282</a>
Public note http://dx.doi.org/10.1111/cch.12282
942 ## - ADDED ENTRY ELEMENTS (KOHA)
Koha item type Journal Article
Item type description Article
Holdings
Withdrawn status Lost status Damaged status Not for loan Collection Home library Current library Date acquired Total Checkouts Full call number Barcode Date last seen Date last checked out Price effective from Koha item type
          MedStar Authors Catalog MedStar Authors Catalog 03/06/2017 1 26331351 26331351 09/26/2017 09/26/2017 03/06/2017 Journal Article

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