Development of a Pediatric Fertility Preservation Program: A Report From the Pediatric Initiative Network of the Oncofertility Consortium. [Review]

MedStar author(s):
Citation: Journal of Adolescent Health. 64(5):563-573, 2019 05.PMID: 30655118Institution: MedStar Washington Hospital CenterDepartment: Obstetrics and Gynecology/Pediatric and AdolescentForm of publication: Journal ArticleMedline article type(s): Journal Article | ReviewSubject headings: *Fertility Preservation | *Medical Oncology | *Neoplasms/co [Complications] | *Pediatrics | *Program Development | Adolescent | Child | Counseling | Female | Humans | Male | Quality of Life/px [Psychology] | Stakeholder ParticipationYear: 2019ISSN:
  • 1054-139X
Name of journal: The Journal of adolescent health : official publication of the Society for Adolescent MedicineAbstract: Copyright (c) 2018 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved.Infertility is known to decrease quality of life among adults. In some cases, infertility is caused by medical conditions and/or treatments prescribed in childhood, and using methods to protect or preserve fertility may expand future reproductive possibilities. Structured programs to offer counseling about infertility risk and fertility preservation options are essential in the care of pediatric patients facing fertility-threatening conditions or treatments, yet multiple barriers to program development exist. This report was developed from the institutional experiences of members of the Pediatric Initiative Network of the Oncofertility Consortium, with the intent of providing guidance for health care providers aiming to establish programs at institutions lacking pediatric fertility preservation services. The mechanics of building a fertility preservation program are discussed, including essential team members, target populations, fertility preservation options (both established and experimental), survivorship issues, research opportunities, and ethical considerations. Common barriers to program development and utilization, including low referral rates and financial concerns, are also discussed, and recommendations made for overcoming such barriers.All authors: Anazodo A, Appiah LC, Burns KC, Gomez-Lobo V, Hoefgen HR, Jaworek Frias O, Laronda MM, Levine J, Meacham LR, Moravek MB, Nahata L, Pavone ME, Quinn GP, Rowell EE, Strine AC, Woodruff TKOriginally published: Journal of Adolescent Health. 2019 Jan 14Fiscal year: FY2019Digital Object Identifier: Date added to catalog: 2019-01-28
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Journal Article MedStar Authors Catalog Article 30655118 Available 30655118

Copyright (c) 2018 Society for Adolescent Health and Medicine. Published by Elsevier Inc. All rights reserved.

Infertility is known to decrease quality of life among adults. In some cases, infertility is caused by medical conditions and/or treatments prescribed in childhood, and using methods to protect or preserve fertility may expand future reproductive possibilities. Structured programs to offer counseling about infertility risk and fertility preservation options are essential in the care of pediatric patients facing fertility-threatening conditions or treatments, yet multiple barriers to program development exist. This report was developed from the institutional experiences of members of the Pediatric Initiative Network of the Oncofertility Consortium, with the intent of providing guidance for health care providers aiming to establish programs at institutions lacking pediatric fertility preservation services. The mechanics of building a fertility preservation program are discussed, including essential team members, target populations, fertility preservation options (both established and experimental), survivorship issues, research opportunities, and ethical considerations. Common barriers to program development and utilization, including low referral rates and financial concerns, are also discussed, and recommendations made for overcoming such barriers.

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