TY  - BOOK
AU  - Scott, Rachel K
TI  - What Do Adults With HIV Want? End-of-Life Care Goals, Values and Beliefs by Gender, Race, Sexual Orientation
SN  - 1049-9091
PY  - 2021///
KW  - *HIV Infections
KW  - *Hospice Care
KW  - *Terminal Care
KW  - Adult
KW  - Female
KW  - Goals
KW  - HIV Infections/dt [Drug Therapy]
KW  - Humans
KW  - Male
KW  - Middle Aged
KW  - Sexual Behavior
KW  - MedStar Health Research Institute
KW  - Journal Article
N2  - CONCLUSION: Integrating culturally-sensitive palliative care services as a component of the HIV care continuum may improve health equity and person-centered care; FINDINGS: The average age of patients was 51 years. 56% were male, 66% heterosexual, and 86% African American. Two distinct groups of patients were identified with respect to end-of-life care preferences: (1) a Relational class (75%) who prioritized family and friends, comfort from church services, and comfort from persons at the end-of-life; and (2) a Transactional/Self-Determination class (25%) who prioritized honest answers from their doctors, and advance care plans over relationships. African Americans had 3x the odds of being in the Relational class versus the Transactional/Self-determination class, Odds ratio = 3.30 (95% CI, 1.09, 10.03), p = 0.035. Males were significantly less likely to be in the relational latent class, Odds ratio = 0.38 (CI, 0.15, 0.98), p = 0.045. Compared to non-African-Americans, African-American PLWH rated the following as important: only taking pain medicines when pain is severe, p = 0.0113; saving larger doses for worse pain, p = 0.0067; and dying in the hospital, p = 0.0285. PLWH who were sexual minorities were more afraid of dying alone, p = 0.0397, and less likely to only take pain medicines when pain is severe, p = 0.0091; METHODS: 223 PLWH were enrolled from 5 hospital-based clinics in Washington, DC. They completed an end-of-life care survey at baseline of the FACE TM-HIV Advance Care Planning clinical trial; OBJECTIVE: We examined factors influencing end-of-life care preferences among persons living with HIV (PLWH)
UR  - https://dx.doi.org/10.1177/1049909120988282
ER  -