000 02446nam a22003617a 4500
008 230628s20232023 xxu||||| |||| 00| 0 eng d
022 _a0266-7681
024 _a10.1177/17531934231162738 [doi]
040 _aOvid MEDLINE(R)
099 _a37005736
245 _aPatient interpretations vary for questions in the Patient-Reported Outcomes Measurement Information System Upper Extremity.
251 _aJournal of Hand Surgery: European Volume. :17531934231162738, 2023 Apr 02
252 _aJ. hand surg., Eur. vol.. :17531934231162738, 2023 Apr 02
253 _aThe Journal of hand surgery, European volume
260 _c2023
260 _fFY2023
260 _p2023 Apr 02
265 _saheadofprint
265 _tPublisher
266 _d2023-06-28
520 _aThe Patient-Reported Outcomes Measurement Information System Upper Extremity (PROMIS-UE) is frequently used in research/clinical care, but how it is understood by patients is unknown. We conducted a qualitative study including 12 cognitive interviews with patients with hand/upper extremity conditions and those purposively sampled for mixed literacy. Using framework analysis, we identified six themes total: difficulty answering questions due to insufficient information; uncertainty about whether to respond with the ability to perform the task with the injured extremity alone, either the injured or healthy extremity, or both; lack of experience doing certain tasks; uncertainty about whether to answer questions based on ability to perform the task with or without adaptive techniques; answering questions based on limitations not related to upper extremity function; and uncertainty regarding whether to answer questions on the basis of ability or pain. This study demonstrates the challenges in completing questionnaires and that variability may limit the reliability, validity and responsiveness of the PROMIS-UE.
546 _aEnglish
650 _aIN PROCESS -- NOT YET INDEXED
650 _zAutomated
651 _aCurtis National Hand Center
657 _aJournal Article
700 _aAzad, Chao Long
_bCURT
700 _aGiladi, Aviram M
_bCURT
790 _aAzad CL, Beres LK, Giladi AM, Wu AW
856 _uhttps://dx.doi.org/10.1177/17531934231162738
_zhttps://dx.doi.org/10.1177/17531934231162738
858 _zhttps://orcid.org/0000-0001-7688-957X
_yGiladi, Aviram M
_uhttps://orcid.org/0000-0001-7688-957X
942 _cART
_dArticle
999 _c12957
_d12957