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Healthcare transition for patients with differences of sexual development and complex urogenital conditions.

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Citation: Seminars in Pediatric Surgery. 28(5):150846, 2019 Oct.PMID: 31668293Institution: MedStar Washington Hospital CenterDepartment: Obstetrics and Gynecology/Pediatric and AdolescentForm of publication: Journal ArticleMedline article type(s): Journal ArticleSubject headings: *Disorders of Sex Development | *Transition to Adult Care/og [Organization & Administration] | *Urogenital Abnormalities | Adolescent | Electronic Health Records | Humans | Quality Improvement | Surveys and Questionnaires | Young AdultYear: 2019 ISSN:

1055-8586

Name of journal: Seminars in pediatric surgeryAbstract: Children with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical "safety net" and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being. Copyright (c) 2019 Elsevier Inc. All rights reserved.All authors: Chulani VL, Gomez-Lobo V, Grimsby GM, Kielb SJOriginally published: Seminars in Pediatric Surgery. 28(5):150846, 2019 Oct.Fiscal year: FY2020Digital Object Identifier:

https://dx.doi.org/10.1016/j.sempedsurg.2019.150846

Date added to catalog: 2019-11-19

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Title notes ( 2 )

Holdings
Item type	Current library	Collection	Call number	Status	Date due	Barcode
Journal Article	MedStar Authors Catalog	Article	31668293	Available		31668293

Children with major congenital anomalies are able to obtain a high level of care in pediatric care settings. In contrast, adult care models emphasize patient responsibility in ensuring their health care needs are met. As patients make this transition, they may fall through the medical "safety net" and struggle to find quality care because of their lack of preparation. Transitional care, including tailored and purposeful medical and social support services, can serve as a bridge across systems and facilitate the safe and effective transfer of young adults with special health care needs from pediatric to adult care. Transitional care prepares youth to manage their own care, effectively use health services, and navigate the shift from distinctly different pediatric to adult models of health care. For unique patient populations such as those with disorders of sexual development and congenital genitourinary conditions, this preparation is vitally important to maximize lifelong functioning and well-being. Copyright (c) 2019 Elsevier Inc. All rights reserved.

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